This HAE Speaks episode re-visits the HAEA National Summit session from HAE Expert and US HAEA Medical Advisory Board Member, Dr. Marc Riedl, as he offers a crucial look at the future of HAE care. 👏 The discussion focuses on the rapidly advancing treatment landscape, covering the latest novel therapies in development, and how these advances aim to improve treatment efficacy, convenience, and quality of life for the HAE community. 🎙️Listen to full episode HERE:🎙️ https://open.spotify.com/episo
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This HAE Speaks episode re-visits the HAEA National Summit sessio…
1.5K views6 months ago
FacebookHereditary Angioedema Association - HAEA
The HAE Shared Decision-Making Tool was created to form the basis for collaboration between you and your treating physician. Use the tool now and download your unique summary to share with your physician! Click HERE to use the tool: https://haea.sdm.health/ #HAE #HAEAResearch #SharedDecisionMaking #HAEA #HereditaryAngioedema | Hereditary Angioedema Association - HAEA
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The HAE Shared Decision-Making Tool was created to form the basi…
15.9K viewsFeb 8, 2024
FacebookHereditary Angioedema Association - HAEA
🩺 ⚕️ We personally invite you to use an exciting (and free!) resource to prepare for your next HAE appointment: The HAEA Shared Decision Making Tool (HAEA SDM Tool). By answering a series of questions, the HAEA SDM Tool summarizes your: -Recent experience with HAE, --Current treatments, and Preferences and what matters most to you when considering an HAE treatment. ➡️ Access the HAEA SDM Tool by clicking the link HERE: https://www.haea.org/pages/p/sdm_tool #HAE #HAEA #SharedDecisionMaking | Her
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🩺 ⚕️ We personally invite you to use an exciting (and free!) resource to …
30.4K views9 months ago
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➡️ You can learn more about HAE with Normal C1-Inhibitor in the newly published landmark study: Hereditary Angioedema with Normal C1 Inhibitor: A Quarter Century of Forward Progress and Persisting Obstacles. Click HERE to read more: https://bit.ly/4kYbiCj #HAEA #HAEA #HereditaryAngioedema #HAEwithNormalC1 | Hereditary Angioedema Association - HAEA
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➡️ You can learn more about HAE with Normal C1-Inhibitor in the ne…
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FacebookHereditary Angioedema Association - HAEA
“It’s not just the attacks, but it’s in-between those attacks that patients still think about this, it still affects their lives.” – Marc Ried, MD, MS at the 2023 US HAEA National Summit. Living with Hereditary Angioedema (HAE) impacts every part of life, even between episodes. That’s why the HAEA is here—to provide support, resources, and community every step of the way! Learn more at www.haea.org. #HAEA #HAEAwareness #LivingWithHAE #HAECommunity #HAEStrong | Hereditary Angioedema Association -
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“It’s not just the attacks, but it’s in-between those attacks that patient…
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🎓 Applications are now open for the Fall 2026 HAEA Scholarships! 👉 Learn more and apply here: https://www.haea.org/pages/p/scholarships The HAEA is proud to support students in our community through: -Pam King HAEA Scholarship -HAEA Scholarship for Aspiring Healthcare Professionals If you’re a US HAEA member with a confirmed HAE diagnosis, you may be eligible to apply. 📅 Applications are open through March 31, 2026 Please note: the scholarship application is a multi-step process, so starting
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🎓 Applications are now open for the Fall 2026 HAEA Scholarships! 👉 Le…
461 views5 months ago
FacebookHereditary Angioedema Association - HAEA
We’re reflecting back on the 2025 US HAEA National Summit, where we focused on Embracing a Brighter Future. ⭐️👏 In Baltimore, we asked patients and caregivers why they attended and what it means to be part of the HAEA community. Here were a few of their responses. 🫶 | Hereditary Angioedema Association - HAEA
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We’re reflecting back on the 2025 US HAEA National Summit, where …
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FacebookHereditary Angioedema Association - HAEA
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🔴 🩺 Do you want to have a more collaborative approach to treatme…
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How does HAE affect the Female Body? From the onset of puberty t…
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FacebookHereditary Angioedema Association - HAEA
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